I have alcohol running through my veins!!!!

Literally...well, ok not really. But I do get alcohol injections about once a month (and not the "fun" kind!)

I have a facial Arteriovenous Malformation (AVM) and am receiving ethyl alcohol embolizations with Dr. Wayne Yakes in Denver.

So while the alcohol isn't actually running through my veins (that would be really bad) it is being injected into them to destroy the AVM vessels and eventually provide a cure!


Check out my website to read my story about life with a facial AVM, meet my doctors, and stay up to date on my treatments through my "Denver Trip" reports!


-
Showing posts with label pictures. Show all posts
Showing posts with label pictures. Show all posts

Friday, September 5, 2008

Go away Scabbies!!!


I'm almost scab free!  The last of my bulky scab came off two days ago and I have just a thin little layer covering the left side of my lip.  Just a very little wound still hanging on.  It's actually been getting worse for the last few days.  Had a few very small bleeds in the past week as well.  But seriously small and easy to deal with.  Yikes!  I'm trying not to equate the tissue breakdown with the fact that I have just gone back to work...maybe it is just a coincidence?!?!?  I'm keeping an eye on it and will probably call Rhonda or Julie next week to get their opinion on it.

Tuesday, August 26, 2008

Angiogram screen shots

I updated my picture link with new screen shots of the Angiograms for each of my AVM treatment's through July.

Totally weird and it looks like the metal coils are just "floating" in my face. But really that is the big "tangle of spaghetti noodles" that is the AVM and the coils are all smushed into them!

June's treatment is like inverted with the dark/light stuff. Kinda fun compared to the others...

I actually have the entire series of pictures which shows the dye going into the vessels and progressing through. But I'm not exactly sure how to get that into a "movie" that you can see. Anyone with technical expertise that wants to help me??? I only pretend to know what I'm doing. ;)

And a bunch of the coils are made of platinum...maybe when this is all done I can melt it down and make a keepsake bracelet!!! Would that be weird?

Shalon

Friday, August 22, 2008

Cyndi's timeline

Ok- I updated the picture page on my website with a timeline for Cyndi starting at 28 until this weeks embo! Her blog is also up and running if you want to find out more info about Cyndi's story, check it out here.

Now I just need to get confirmation from Keith on his.

And eventually my AVM-sisters, Steph & Andrea will get me some pics also!!!

Updated pics!


So Cyndi sent over the pictures she took of us from this week! I have to say again that she makes me feel like a wimp...but oh well, we all have varying degrees of this AVM and all face different challenges.

Here is a just one pic, but to see all the them, check out the slideshow on my website.
I'm also going to be adding some additional photos of Cyndi, and some of Keith once I get them all put together in a timeline slideshow!
Hope you all are enjoying my unlimited AVM posts!!!
Shalon


Wednesday, August 6, 2008

A little less scabby today


So when I got to HBOT today I noticed that the gigantic scab on my face from last months embo, was kinda loose and hanging. A little nudge and it came off (I promptly threw it on the ground and stomped on it with a "good riddance!") So now there is a little bit of an ugly scar, but who cares! It is much better than the wound. I updated my "Timeline Pics" with a new one from today w/o the scab!


Now I just need my lip and my hole to finish healing! Progress!